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Pediatric to adult transfer of care in patients with pancreas disease: Recommendations for care and research opportunities
Journal article   Open access   Peer reviewed

Pediatric to adult transfer of care in patients with pancreas disease: Recommendations for care and research opportunities

Cheryl E Gariepy, Luis F Lara, Jeffrey J Easler, Ala Shaikhkhalil and Aliye Uc
The American journal of gastroenterology, Vol.118(3), pp.443-451
03/2023
DOI: 10.14309/ajg.0000000000001910
PMCID: PMC10147498
PMID: 35862827
url
https://scholarworks.indianapolis.iu.edu/bitstreams/7f889a0f-e930-449c-9a93-50e025ef752d/downloadView
Open Access

Abstract

Young adults who have experienced recurrent acute pancreatitis and chronic pancreatitis as children or adolescents are vulnerable to poor follow-up and disease management during the transfer from the pediatric to adult healthcare system. Although formalized transition programs for young adults have been developed and described for other disease conditions, no such program has been described for young adults with pancreatic disease. This document is the first expert opinion outlining the important aspects of a transitional care and transfer program tailored to youth with recurrent acute and chronic pancreatitis. We emphasize the unique needs of these patients as they transfer to adult health care and the need for further research. The goal of improved transitional care and transfer is to enhance the services provided to adolescents/young adults with pancreatic disease in both healthcare settings and improve continuity of follow-up care.

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