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Pharma Websites and "Professionals-Only" Information: The Implications for Patient Trust and Autonomy
Journal article   Open access   Peer reviewed

Pharma Websites and "Professionals-Only" Information: The Implications for Patient Trust and Autonomy

Mark Alan Graber, Eliyakim Hershkop and Rachel Ilana Graber
Journal of medical Internet research, Vol.19(5), p.178
05/24/2017
DOI: 10.2196/jmir.7164
PMCID: PMC5463051
PMID: 28539303
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Pharma Websites and Professionals-Only Information: The Implica480.78 kBDownloadView
Published (Version of record)CC BY V4.0 Open Access
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https://doi.org/10.2196/jmir.7164View
Published (Version of record)J Med Internet Res 2017;19(5):e178.

Abstract

BACKGROUND: Access to information is critical to a patient's valid exercise of autonomy. One increasingly important source of medical information is the Internet. Individuals often turn to drug company ("pharma") websites to look for drug information.

OBJECTIVE: The objective of this study was to determine whether there is information on pharma websites that is embargoed: Is there information that is hidden from the patient unless she attests to being a health care provider? We discuss the implications of our findings for health care ethics.

METHODS: We reviewed a convenience sample of 40 pharma websites for "professionals-only" areas and determined whether access to those areas was restricted, requiring attestation that the user is a health care professional in the United States.

RESULTS: Of the 40 websites reviewed, 38 had information that was labeled for health care professionals-only. Of these, 24 required the user to certify their status as a health care provider before they were able to access this "hidden" information.

CONCLUSIONS: Many pharma websites include information in a "professionals-only" section. Of these, the majority require attestation that the user is a health care professional before they can access the information. This leaves patients with two bad choices: (1) not accessing the information or (2) lying about being a health care professional. Both of these outcomes are unacceptable. In the first instance, the patient's access to information is limited, potentially impairing their health and their ability to make reasonable and well-informed decisions. In the second instance, they may be induced to lie in a medical setting. "Teaching" patients to lie may have adverse consequences for the provider-patient relationship.

Ethics Bioethics and Medical Ethics Emergency Medicine OAfund personal autonomy readability trust pharmacists health care professionals internet

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