Photovoice and Clubfoot: Using a Participatory Research Method to Study Caregiver Adherence to the Ponseti Method in Perú

Alison Pletch; Jose Morcuende; Hersey Barriga; Jose Segura; Alexandro Salas

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Photovoice and Clubfoot: Using a Participatory Research Method to Study Caregiver Adherence to the Ponseti Method in Perú

Journal article

Open access

Peer reviewed

Photovoice and Clubfoot: Using a Participatory Research Method to Study Caregiver Adherence to the Ponseti Method in Perú

Alison Pletch, Jose Morcuende, Hersey Barriga, Jose Segura and Alexandro Salas

The Iowa orthopaedic journal, Vol.35, pp.160-168

2015

PMCID: PMC4492147

PMID: 26361460

Appears in Diamond Open Access

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https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4492147/View

Published (Version of record) Open Access

Abstract

The Ponseti Method of casting and bracing is the gold-standard treatment for congenital clubfoot in young children. Despite its many advantages, outcomes depend heavily on caregiver adherence to the treatment protocol. Our study explored the experience caregivers had with the Ponseti method using a photography-based participatory research method known as Photovoice. Five adult caregivers were recruited from families pursuing clubfoot treatment at the Children's Hospital in Lima, Perú, during June, 2013. Each was provided a digital camera and training and agreed to photograph their experiences caring for a child undergoing Ponseti Method clubfoot treatment. Participants held four to five weekly one-on-one meetings with the researcher to discuss their photos. They also attended a group meeting at the end of the study to view and discuss photos of other participants. Using photos collected at this meeting, participants identified themes that summarized their experiences with treatment and discussed ways to improve delivery of care in order to support caregiver adherence to treatment. These results were presented to clinicians in Lima who use the Ponseti Method. The Photovoice method allowed researchers and participants to study the experience caregivers have with the Ponseti Method, and results can be used to inform the design of patient-based care models.

Caregivers

Peru

Photography

Braces - utilization

Follow-Up Studies

Risk Assessment

Humans

Child, Preschool

Hospitals, Pediatric

Infant

Male

Clubfoot - diagnosis

Guideline Adherence

Time Factors

Monitoring, Physiologic - methods

Adult

Female

Developing Countries

Casts, Surgical - utilization

Clubfoot - therapy

Parent-Child Relations

Child

Research Design

Details

Title: Subtitle: Photovoice and Clubfoot: Using a Participatory Research Method to Study Caregiver Adherence to the Ponseti Method in Perú
Creators: Alison Pletch - Department of Orthopedics, UIHC; Department of Trauma and Orthopedics, INSN (Lima, Perú)
Jose Morcuende - Department of Orthopedics, UIHC; Department of Trauma and Orthopedics, INSN (Lima, Perú)
Hersey Barriga - Department of Orthopedics, UIHC; Department of Trauma and Orthopedics, INSN (Lima, Perú)
Jose Segura - Department of Orthopedics, UIHC; Department of Trauma and Orthopedics, INSN (Lima, Perú)
Alexandro Salas - Department of Orthopedics, UIHC; Department of Trauma and Orthopedics, INSN (Lima, Perú)
Resource Type: Journal article
Publication Details: The Iowa orthopaedic journal, Vol.35, pp.160-168
Publisher: Dept. of Orthopaedics, The University of Iowa; United States
PMID: 26361460
PMCID: PMC4492147
ISSN: 1541-5457
eISSN: 1555-1377
Language: English
Date published: 2015
Academic Unit: Stead Family Department of Pediatrics; Orthopedics and Rehabilitation
Record Identifier: 9984040443702771

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