Journal article
Planning for Ancillary Care Provision: Lessons From the Developing World
Journal of empirical research on human research ethics, Vol.11(2), pp.129-134
04/01/2016
DOI: 10.1177/1556264616637961
PMCID: PMC4917407
PMID: 26994734
Abstract
As part of a study designed to assess a new strategy for increasing health research participation by members of underrepresented populations in the United States, we explored expectations about volunteering for research among people from lower income and largely minority communities in Madison, Wisconsin. Members of these communities often saw research participation as a means to access health care that might otherwise be unavailable to them. In light of persistent structural barriers to access, and the resulting health disparities, we argue that one cannot assume the existence of a fair exchange in which a community is likely to benefit from the results of research conducted with members of that community. We use ethical analysis and empirical research conducted in the developing world to explore how investigators in the United States might think about their obligations to provide ancillary care.
Details
- Title: Subtitle
- Planning for Ancillary Care Provision: Lessons From the Developing World
- Creators
- Nora Jacobson - University of Wisconsin–MadisonAnna Krupp - University of Wisconsin–MadisonBarbara J. Bowers - University of Wisconsin–Madison
- Resource Type
- Journal article
- Publication Details
- Journal of empirical research on human research ethics, Vol.11(2), pp.129-134
- DOI
- 10.1177/1556264616637961
- PMID
- 26994734
- PMCID
- PMC4917407
- NLM abbreviation
- J Empir Res Hum Res Ethics
- ISSN
- 1556-2646
- eISSN
- 1556-2654
- Publisher
- Sage
- Number of pages
- 6
- Grant note
- UL1TR000427 / NATIONAL CENTER FOR ADVANCING TRANSLATIONAL SCIENCES; United States Department of Health & Human Services; National Institutes of Health (NIH) - USA; NIH National Center for Advancing Translational Sciences (NCATS) UL1TR000427 / Clinical and Translational Science Award (CTSA) program through the NIH National Center for Advancing Translational Sciences (NCATS); United States Department of Health & Human Services; National Institutes of Health (NIH) - USA; NIH National Center for Advancing Translational Sciences (NCATS)
- Language
- English
- Date published
- 04/01/2016
- Academic Unit
- Nursing
- Record Identifier
- 9984370757102771
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