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Post-treatment head and neck cancer survivors' approaches to self-management: A qualitative study
Journal article   Peer reviewed

Post-treatment head and neck cancer survivors' approaches to self-management: A qualitative study

Seyedehtanaz Saeidzadeh, Stephanie Gilbertson-White, Catherine H. Cherwin, Heather Schacht Reisinger, Nicholas Kendell, Nitin A. Pagedar and Aaron T. Seaman
European journal of oncology nursing : the official journal of European Oncology Nursing Society, Vol.52, pp.101944-101944
06/01/2021
DOI: 10.1016/j.ejon.2021.101944
PMCID: PMC8217137
PMID: 33774374

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Abstract

Purpose: Post-treatment head and neck cancer (HNC) survivors contend with distinct, long-term challenges related to cancer treatments that impact their day-to-day lives. Alongside follow-up cancer care, they also must be responsible for the daily management of often intrusive physical and psychological symptoms, as well as maintaining their health and a lifestyle to promote their well-being. The purpose of this study was to identify HNC survivors' approaches toward engagement in self-management activities. Methods: Post-treatment HNC survivors (N=22) participated in the study through purposeful sampling. Participants were eligible if they 1) had a history of upper aerodigestive tract cancer; 2) completed their most recent primary treatment (i.e. chemotherapy, radiation, and surgery) more than eighteen months prior and had no evidence of HNC, and 3) could speak in English. A semi-structured interview was used. Data was analyzed using content analysis. Results: We identified three approaches that survivors took towards self-management activities: taking charge, living with it, and engaging as needed. Our results showed that taking charge is when survivors take an active role in evaluating their health and taking action subsequently; as needed represents engaging in self-management as necessary; and living with it reflects adapting to the symptoms and side effects without managing them. Conclusions: We propose self-management approaches as a novel mechanism to understand the relationship between survivors' characteristics and health preferences and their self-management. It is important for clinicians to highlight the variation in individuals 'self-management approaches as they work to identify tailored patient-centered strategies that compliment specific patient needs.
Life Sciences & Biomedicine Nursing Oncology Science & Technology

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