Practice-based Research Network Research Good Practices (PRGPs): Summary of Recommendations

Rowena J Dolor; Kimberly Campbell-Voytal; Jeanette Daly; Zsolt J Nagykaldi; Maeve O'Beirne; Pamela Sterling; Lyle J Fagnan; Barcey Levy; LeAnn Michaels; Hannah A Louks; Paul Smith; Cheryl B Aspy; V Beth Patterson; Miria Kano; Andrew L Sussman; Robert Williams; Anne Victoria Neale

doi:10.1111/cts.12317

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Practice-based Research Network Research Good Practices (PRGPs): Summary of Recommendations

Journal article

Open access

Practice-based Research Network Research Good Practices (PRGPs): Summary of Recommendations

Rowena J Dolor, Kimberly Campbell-Voytal, Jeanette Daly, Zsolt J Nagykaldi, Maeve O'Beirne, Pamela Sterling, Lyle J Fagnan, Barcey Levy, LeAnn Michaels, Hannah A Louks, …

Clinical and translational science, Vol.8(6), pp.638-646

12/2015

DOI: 10.1111/cts.12317

PMCID: PMC5351126

PMID: 26296309

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Abstract

Practice-based research networks (PBRNs) conduct research in community settings, which poses quality control challenges to the integrity of research, such as study implementation and data collection. A foundation for improving research processes within PBRNs is needed to ensure research integrity. Network directors and coordinators from seven U.S.-based PBRNs worked with a professional team facilitator during semiannual in-person meetings and monthly conference calls to produce content for a compendium of recommended research practices specific to the context of PBRNs. Participants were assigned to contribute content congruent with their expertise. Feedback on the draft document was obtained from attendees at the preconference workshop at the annual PBRN meeting in 2013. A revised document was circulated to additional PBRN peers prior to finalization. The PBRN Research Good Practices (PRGPs) document is organized into four chapters: (1) Building PBRN Infrastructure; (2) Study Development and Implementation; (3) Data Management, and (4) Dissemination Policies. Each chapter contains an introduction, detailed procedures for each section, and example resources with information links. The PRGPs is a PBRN-specific resource to facilitate PBRN management and staff training, to promote adherence to study protocols, and to increase validity and generalizability of study findings.

United States

Translational Medical Research - organization & administration

Program Development

Health Services Research - organization & administration

Humans

Data Collection

Internet

Translational Medical Research - methods

Primary Health Care - standards

Community Health Services - organization & administration

Quality Control

Details

Title: Subtitle: Practice-based Research Network Research Good Practices (PRGPs): Summary of Recommendations
Creators: Rowena J Dolor - Duke Clinical Research Institute, Duke University Medical Center, Durham, North Carolina, USA
Kimberly Campbell-Voytal - Department of Family Medicine and Public Health Sciences, Wayne State University School of Medicine, Detroit, Michigan, USA
Jeanette Daly - Department of Family Medicine, University of Iowa, Iowa City, Iowa, USA
Zsolt J Nagykaldi - Department of Family and Preventive Medicine, University of Oklahoma Health Sciences Center, Oklahoma City, Oklahoma, USA
Maeve O'Beirne - Departments of Family Medicine and Community Health Sciences, University of Calgary, Calgary, Alberta, Canada
Pamela Sterling - Departments of Family Medicine and Community Health Sciences, University of Calgary, Calgary, Alberta, Canada
Lyle J Fagnan - Department of Family Medicine, Oregon Health & Science University, Portland, Oregon, USA
Barcey Levy - Department of Family Medicine, University of Iowa, Iowa City, Iowa, USA
LeAnn Michaels - Department of Family Medicine, Oregon Health & Science University, Portland, Oregon, USA
Hannah A Louks - Department of Family Medicine, University of Wisconsin-Madison, Madison, Wisconsin, USA
Paul Smith - Department of Family Medicine, University of Wisconsin-Madison, Madison, Wisconsin, USA
Cheryl B Aspy - Department of Family and Preventive Medicine, University of Oklahoma Health Sciences Center, Oklahoma City, Oklahoma, USA
V Beth Patterson - Departments of Family Medicine and Community Health Sciences, University of Calgary, Calgary, Alberta, Canada
Miria Kano - Department of Family and Community Medicine, University of New Mexico, Albuquerque, New Mexico, USA
Andrew L Sussman - Department of Family and Community Medicine, University of New Mexico, Albuquerque, New Mexico, USA
Robert Williams - Department of Family and Community Medicine, University of New Mexico, Albuquerque, New Mexico, USA
Anne Victoria Neale - Department of Family Medicine and Public Health Sciences, Wayne State University School of Medicine, Detroit, Michigan, USA
Resource Type: Journal article
Publication Details: Clinical and translational science, Vol.8(6), pp.638-646
Publisher: United States
DOI: 10.1111/cts.12317
PMID: 26296309
PMCID: PMC5351126
ISSN: 1752-8054
eISSN: 1752-8062
Grant note: UL1 TR000427 / NCATS NIH HHS R18 HS019601 / AHRQ HHS P30 HS021641 / AHRQ HHS P30 HS021644 / AHRQ HHS R01 HS016713 / AHRQ HHS
Language: English
Date published: 12/2015
Academic Unit: Epidemiology; Family and Community Medicine
Record Identifier: 9984025298602771

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