Journal article
Pregnancy as Foreground in Cystic Fibrosis Carrier Testing Decisions in Primary Care
Genetic Testing and Molecular Biomarkers, Vol.13(1), pp.133-142
02/2009
DOI: 10.1089/gtmb.2008.0085
PMCID: PMC2981356
PMID: 19309287
Abstract
Cystic fibrosis carrier testing (CFCT) is among the first of the DNA tests offered prenatally in primary care settings. This paper from a descriptive qualitative study describes the influence of pregnancy in CFCT decisions by women receiving community-based prenatal care. Twenty-seven women receiving prenatal care in Midwestern U.S. primary care clinics completed semistructured interviews. Audiotaped interviews were analyzed using content analysis. Participants described decision-making influences and strategies from the perspective of “being pregnant.” Patterns of attitudes and beliefs include (1) dealing with emotions, (2) pregnancy is natural, and (3) thinking about the baby. Strategies in the decision-making process included (1) reducing stress, (2) choosing what is relevant, (3) doing everything right, (4) wanting to be prepared, (5) delaying information, and (6) trusting God. While other factors were mentioned by some women, major themes reflect the influence of currently being pregnant on the decision-making process. These findings suggest that pregnancy is a powerful influence on the decision-making process and may not be the optimal time to make fully informed decisions regarding genetic carrier testing. Further understanding of factors influencing the genetic testing decision-making process is needed. Offering CFCT prior to conception is advocated.
Details
- Title: Subtitle
- Pregnancy as Foreground in Cystic Fibrosis Carrier Testing Decisions in Primary Care
- Creators
- Kathleen J. H SparbelJanet K Williams - University of Iowa, Nursing
- Resource Type
- Journal article
- Publication Details
- Genetic Testing and Molecular Biomarkers, Vol.13(1), pp.133-142
- Publisher
- Mary Ann Liebert, Inc
- DOI
- 10.1089/gtmb.2008.0085
- PMID
- 19309287
- PMCID
- PMC2981356
- ISSN
- 1945-0265
- eISSN
- 1945-0257
- Grant note
- Grant support 1 F31 NR 009161-01/NR/NINR NIH HHS/United States T32 NR007110/NR/NINR NIH HHS/United States
- Language
- English
- Date published
- 02/2009
- Academic Unit
- Nursing
- Record Identifier
- 9983557608002771
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