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Prenatal diagnosis of orofacial clefts: association with maternal satisfaction, team care, and treatment outcomes
Journal article   Open access   Peer reviewed

Prenatal diagnosis of orofacial clefts: association with maternal satisfaction, team care, and treatment outcomes

James M Robbins, Peter Damiano, Charlotte M Druschel, Charlotte A Hobbs, Paul A Romitti, April A Austin, Margaret Tyler, J Alex Reading and Whitney Burnett
The Cleft palate-craniofacial journal, Vol.47(5), pp.476-481
09/2010
DOI: 10.1597/08-177
PMCID: PMC6034626
PMID: 20822456
url
https://www.ncbi.nlm.nih.gov/pmc/articles/6034626View
Open Access

Abstract

Prenatal diagnosis of an orofacial cleft is thought to allow mothers greater opportunity to become prepared for the special needs of an infant with a cleft and plan for the care of their child. Using a population-based sample, we determined which children were more likely to be diagnosed prenatally, and whether early diagnosis was associated with maternal satisfaction and treatment outcomes. Interviews were completed with 235 (49% of eligible) mothers of children ages 2 to 7 with orofacial clefts initially enrolled in the National Birth Defects Prevention Study from the Arkansas, Iowa, and New York sites. Maternal satisfaction with information, support, and treatment outcomes was compared between women who received a prenatal diagnosis and those who did not. Of 235 infants with clefts, 46 (19.6%) were identified prenatally. One third of mothers were somewhat or not satisfied with information provided by medical staff. Satisfaction did not vary by timing of the diagnosis. Infants diagnosed prenatally were no more likely to have received care provided by a recognized multidisciplinary cleft team (76%) than were infants diagnosed at birth (78%). Speech problems and facial appearance as rated by the mother did not vary by timing of the diagnosis. Timing of the cleft diagnosis did not alter maternal satisfaction with information, whether care was provided by a designated cleft team, or maternal perception of facial appearance or speech. Further research should determine whether prenatal diagnoses alter maternal anxiety or influence postnatal morbidity.
 Cleft Palate - diagnosis Cleft Lip - diagnosis Professional-Patient Relations Humans Income Patient Care Team Arkansas Personal Satisfaction Mothers - psychology Female Feeding Methods Face Prenatal Education Esthetics New York Fetal Diseases - diagnosis Attitude to Health Prenatal Diagnosis Access to Information Social Support Mothers - education Treatment Outcome Pregnancy Speech Intelligibility - physiology Iowa Early Diagnosis Population Surveillance

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