Promoting successful participation of people living with Alzheimer's disease and related dementias in pain-related neuroimaging research studies

Wm. Larkin Iversen; Todd B. Monroe; Sebastian Atalla; Alison R. Anderson; Ronald L. Cowan; Kathy D. Wright; Michelle D. Failla; Karen O. Moss

doi:10.3389/fpain.2022.926459

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Promoting successful participation of people living with Alzheimer's disease and related dementias in pain-related neuroimaging research studies

Journal article

Open access

Peer reviewed

Promoting successful participation of people living with Alzheimer's disease and related dementias in pain-related neuroimaging research studies

Wm. Larkin Iversen, Todd B. Monroe, Sebastian Atalla, Alison R. Anderson, Ronald L. Cowan, Kathy D. Wright, Michelle D. Failla and Karen O. Moss

Frontiers in pain research (Lausanne, Switzerland), Vol.3, pp.926459-926459

08/19/2022

DOI: 10.3389/fpain.2022.926459

PMCID: PMC9437430

PMID: 36061416

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https://doi.org/10.3389/fpain.2022.926459View

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Abstract

Recruitment and retention of participants for pain-related neuroimaging research is challenging and becomes increasingly so when research participants have a diagnosis of Alzheimer's disease and related dementias (ADRD). This article shares the authors' recommendations from several years of successful recruitment and completion of pain-related neuroimaging studies of people living with ADRD and includes supportive literature. While not an exhaustive list, this review covers several topics related to recruitment and retention of participants living with ADRD, including community engagement, capacity to consent, dementia diagnostic criteria, pain medication and other study exclusion criteria, participant and caregiver burden, communication concerns, and relationships with neuroimaging facilities. Threaded throughout the paper are important cultural considerations. Additionally, we discuss implications of the coronavirus (COVID-19) pandemic for recruitment. Once tailored to specific research study protocols, these proven strategies may assist researchers with successfully recruiting and retaining participants living with ADRD for pain-related neuroimaging research studies toward improving overall health outcomes.

consent (incapable adults)

dementia—Alzheimer's disease

ethics

neuroimaging

Pain Research

recruitment

Details

Title: Subtitle: Promoting successful participation of people living with Alzheimer's disease and related dementias in pain-related neuroimaging research studies
Creators: Wm. Larkin Iversen - The Ohio State University
Todd B. Monroe - The Ohio State University
Sebastian Atalla - University of North Carolina at Chapel Hill
Alison R. Anderson - The Ohio State University
Ronald L. Cowan - University of Tennessee Health Science Center
Kathy D. Wright - The Ohio State University
Michelle D. Failla - The Ohio State University
Karen O. Moss - The Ohio State University
Resource Type: Journal article
Publication Details: Frontiers in pain research (Lausanne, Switzerland), Vol.3, pp.926459-926459
DOI: 10.3389/fpain.2022.926459
PMID: 36061416
PMCID: PMC9437430
NLM abbreviation: Front Pain Res (Lausanne)
ISSN: 2673-561X
eISSN: 2673-561X
Publisher: Frontiers Media S.A
Language: English
Date published: 08/19/2022
Academic Unit: Nursing
Record Identifier: 9984446522202771

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