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Prospective study of muscle cramps in Charcot‐Marie‐Tooth disease
Journal article   Peer reviewed

Prospective study of muscle cramps in Charcot‐Marie‐Tooth disease

Nicholas E Johnson, Janet Sowden, Nuran Dilek, Katy Eichinger, Joshua Burns, Michael P Mcdermott, Michael E Shy and David N Herrmann
Muscle & nerve, Vol.51(4), pp.485-488
04/2015
DOI: 10.1002/mus.24333
PMCID: PMC4860275
PMID: 25042364
url
https://www.ncbi.nlm.nih.gov/pmc/articles/4860275View
Open Access

Abstract

ABSTRACT Introduction: This study aims to assess the frequency, location, severity, duration, and fluctuation over time of muscle cramps in Charcot‐Marie‐Tooth disease (CMT). Methods: Inherited Neuropathies Consortium Contact Registry participants recorded the occurrence and characteristics of muscle cramps using an 11‐question survey administered 3 times over 8 weeks. Results: A total of 110 adult patients with CMT completed the survey. Weekly cramp frequency was 9.3 (SD 12.3), and 23% had daily muscle cramps. Twenty‐two percent reported a significant impact on quality of life. Over 8 weeks, the daily frequency and severity of muscle cramps did not change significantly. Conclusions: Patients with CMT have muscle cramps that vary little over an 8‐week period, and they may interfere with quality of life. These data may be useful in the planning of clinical trials of agents to treat adults with CMT‐associated muscle cramps. Muscle Nerve 51: 485–488, 2015
muscle cramps Rare Disease Clinical Research Network CMT symptoms Charcot‐Marie‐Tooth disease longitudinal survey quality of life RDCRN

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