Journal article
Psychosocial Outcomes in Children with Cleft Lip and/or Palate: Associations of Demographic, Cleft Morphologic, and Treatment-Related Variables
The Cleft palate-craniofacial journal, Vol.61(11), pp.1784-1802
11/2024
DOI: 10.1177/10556656231181581
PMID: 37350106
Abstract
To determine associations of demographic, morphologic, and treatment protocol parameters with quality of life (QoL), appearance/speech satisfaction, and psychological adjustment.
Observational study utilizing retrospective report of protocol variables and current outcome variables.
Six North American cleft treatment clinics.
Children, ages 8.0-10.99 years, with Cleft Lip ± Alveolus, Cleft Palate, Cleft Lip and Palate, and parents (N = 284).
Pediatric QoL Inventory (PedsQL): Parent, Child, Family Impact Module (FIM); Patient Reported Outcome Measurement Information System (PROMIS); Child Behavior Checklist (CBCL); CLEFT-Q.
Outcome scores were average with few differences by cleft type. Multiple regression analyses yielded significant associations (
.05) between socioeconomic status, race, and age at assessment and parent- and self-reported measures. Females had higher PROMIS Depression (β=.20) but lower CBCL Affective (β = -.16) and PROMIS Stigma scores (β= -.24). Incomplete cleft lip was associated with lower PROMIS Depression, and more positive ratings of CLEFT-Q: Nose, Nostril, Lip Scar; CBCL Competence scores, (βs = -.17 to .17). Younger Age at Lip Closure was associated with higher CBCL School Competence (β= -.18). Younger Age at Palate Closure was associated with higher Child PedsQL Total, Physical, Psychosocial QoL, and better CLEFT-Q Speech Function (βs = -.18 to -.15). Furlow Palatoplasty was associated with more CBCL Externalizing Problems (β = .17) higher CBCL Activities (β = .16). For all diagnoses, fewer Total Cleft-Related Surgeries was associated with lower PROMIS Stigma and higher CBCL Total Competence and Activities (βs = -.16 to .15).
Demographic characteristics, lip morphology, and treatment variables are related to later psychological functioning.
Details
- Title: Subtitle
- Psychosocial Outcomes in Children with Cleft Lip and/or Palate: Associations of Demographic, Cleft Morphologic, and Treatment-Related Variables
- Creators
- Canice E Crerand - Nationwide Children's HospitalAmy L Conrad - University of IowaClaudia Crilly Bellucci - Shriners Hospitals for Children - ChicagoMeredith Albert - University of Illinois ChicagoCelia E Heppner - Southwestern Medical CenterFarah Sheikh - Hospital for Sick ChildrenSuzanne Woodard - Clinic for Special ChildrenShivika Udaipuria - Nationwide Children's HospitalKathleen A Kapp-Simon - Shriners Hospitals for Children - Chicago
- Resource Type
- Journal article
- Publication Details
- The Cleft palate-craniofacial journal, Vol.61(11), pp.1784-1802
- DOI
- 10.1177/10556656231181581
- PMID
- 37350106
- NLM abbreviation
- Cleft Palate Craniofac J
- eISSN
- 1545-1569
- Grant note
- DOI: 10.13039/100003690, name: Cleft Palate Foundation
- Language
- English
- Electronic publication date
- 06/22/2023
- Date published
- 11/2024
- Academic Unit
- Pediatric Psychology; Stead Family Department of Pediatrics; Iowa Neuroscience Institute; Craniofacial Anomalies Research Center
- Record Identifier
- 9984438760202771
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