Journal article
Public Perspectives on Biospecimen Procurement: What Biorepositories Should Consider
Biopreservation and biobanking, Vol.11(3), pp.137-143
06/01/2013
DOI: 10.1089/bio.2013.0001
PMCID: PMC4076971
PMID: 24850089
Abstract
Purpose:
Human biospecimens are central to biobanking efforts, yet how members of the public think about biobank procurement strategies is not well understood. This study aimed to explore public perspectives toward the procurement of residual clinical material versus “direct” procurement strategies such as the drawing of blood.
Methods:
Members of the public residing in and beyond the biobank catchment area of the University of Iowa Hospitals and Clinics were randomly selected to participate in focus groups and a telephone survey.
Results:
The majority of survey participants (75%,
n
=559) found both residual and direct procurement strategies equally workable. Small proportions preferred either residual (15%;
n
=117) or direct (5%;
n
=40) procurement. Focus group participants (
n
=48) could identify benefits to both procurement strategies, but raised concerns about possible donor inconvenience/discomfort and reduced biospecimen accrual in the case of direct procurement. Residual procurement raised concerns about lower-quality samples being procured without full donor awareness.
Conclusion:
Biobanks should consider that members of the public in their research programs may be willing to make specimen donations regardless of whether a residual or direct procurement strategy is employed. Limiting patient discomfort and inconvenience may make direct procurement strategies more acceptable to some members of the public. Ensuring donor awareness through effective informed consent may allay public concerns about the indirectness of donating clinical biospecimens.
Details
- Title: Subtitle
- Public Perspectives on Biospecimen Procurement: What Biorepositories Should Consider
- Creators
- Jamie L'Heureux - 1Department of 1Pediatrics, Carver College of Medicine, The University of Iowa, Iowa City, IowaJeffrey C Murray - 1Department of 1Pediatrics, Carver College of Medicine, The University of Iowa, Iowa City, IowaElizabeth Newbury - 2Department of Anthropology, College of Liberal Arts and Sciences, The University of Iowa, Iowa City, IowaLaura Shinkunas - 3Department of Program in Bioethics and Humanities, Carver College of Medicine, The University of Iowa, Iowa City, IowaChristian M Simon - 4Department of Internal Medicine, Carver College of Medicine, The University of Iowa, Iowa City, Iowa
- Resource Type
- Journal article
- Publication Details
- Biopreservation and biobanking, Vol.11(3), pp.137-143
- DOI
- 10.1089/bio.2013.0001
- PMID
- 24850089
- PMCID
- PMC4076971
- NLM abbreviation
- Biopreserv Biobank
- ISSN
- 1947-5535
- eISSN
- 1947-5543
- Publisher
- Mary Ann Liebert, Inc
- Language
- English
- Date published
- 06/01/2013
- Academic Unit
- Medical Ethics; Anatomy and Cell Biology; Stead Family Department of Pediatrics; Epidemiology; Pediatric Dentistry; Craniofacial Anomalies Research Center; Dental Research; Internal Medicine
- Record Identifier
- 9984025460602771
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