Quality Indicator Development for Positive Screen Follow-up for Sickle Cell Disease and Trait

Elissa Z Faro; C Jason Wang; Suzette O Oyeku

doi:10.1016/j.amepre.2016.01.005

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Quality Indicator Development for Positive Screen Follow-up for Sickle Cell Disease and Trait

Journal article

Open access

Peer reviewed

Quality Indicator Development for Positive Screen Follow-up for Sickle Cell Disease and Trait

Elissa Z Faro, C Jason Wang and Suzette O Oyeku

American journal of preventive medicine, Vol.51(1 Suppl 1), pp.S48-S54

07/2016

DOI: 10.1016/j.amepre.2016.01.005

PMID: 27320465

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Abstract

Extensive variation exists in the follow-up of positive screens for sickle cell disease. Limited quality indicators exist to measure if the public health goals of screening-early initiation of treatment and enrollment to care-are being achieved. This manuscript focuses on the development of quality indicators related to the follow-up care for individuals identified with sickle cell disease and trait through screening processes. The authors used a modified Delphi method to develop the indicators. The process included a comprehensive literature review with rating of the evidence followed by ratings of draft indicators by an expert panel held in September 2012. The expert panel was nominated by leaders of various professional societies, the Health Resources and Services Administration, and the National Heart, Lung, and Blood Institute and met face to face to discuss and rate each indicator. The panel recommended nine quality indicators focused on key aspects of follow-up care for individuals with positive screens for sickle cell disease and trait. Public health programs and healthcare institutions can use these indicators to assess the quality of follow-up care and provide a basis for improvement efforts to ensure appropriate family education, early initiation of treatment, and appropriate referral to care for individuals identified with sickle cell disease and trait.

Advisory Committees - standards

Anemia, Sickle Cell - therapy

Delphi Technique

Follow-Up Studies

Humans

Public Health

Quality Indicators, Health Care - standards

Details

Title: Subtitle: Quality Indicator Development for Positive Screen Follow-up for Sickle Cell Disease and Trait
Creators: Elissa Z Faro - National Institute for Children’s Health Quality
C Jason Wang - Stanford University
Suzette O Oyeku - Children's Hospital at Montefiore
Resource Type: Journal article
Publication Details: American journal of preventive medicine, Vol.51(1 Suppl 1), pp.S48-S54
DOI: 10.1016/j.amepre.2016.01.005
PMID: 27320465
NLM abbreviation: Am J Prev Med
ISSN: 0749-3797
eISSN: 1873-2607
Language: English
Date published: 07/2016
Academic Unit: General Internal Medicine; Internal Medicine
Record Identifier: 9984359578102771

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