Quality of life of family caregivers of children with orofacial clefts in Nigeria: a mixed-method study

T Awoyale; A T Onajole; B E Ogunnowo; W L Adeyemo; K L Wanyonyi; A Butali

doi:10.1111/odi.12379

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Quality of life of family caregivers of children with orofacial clefts in Nigeria: a mixed-method study

Journal article

Peer reviewed

Quality of life of family caregivers of children with orofacial clefts in Nigeria: a mixed-method study

T Awoyale, A T Onajole, B E Ogunnowo, W L Adeyemo, K L Wanyonyi and A Butali

Oral diseases, Vol.22(2), pp.116-122

03/2016

DOI: 10.1111/odi.12379

PMCID: PMC4744119

PMID: 26456150

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https://www.ncbi.nlm.nih.gov/pmc/articles/4744119View

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Abstract

Orofacial clefts (OFCs) are common birth defects that may impose a large burden on the health and psychosocioeconomic well-being of affected individuals and families. This study aims to identify qualitative factors that affect the quality of life (QOL) of family caregivers of children with OFCs. A mixed-method study in which family caregivers of OFCs children were consecutively recruited from cleft clinics over a 3-month period. Quantitative data were analyzed using SPSS version 17 and focus group discussion by framework analysis. A total of 107 caregivers participated in the entire study, and 24 caregivers participated in the focus group discussions. About 50% of the children had cleft lip and palate (CLP), 28% with cleft lips only (CL) and 23.4% with cleft palate only (CP). Poor access to specific information and lack of empathy of professionals affected the quality of life and delivery of family-centered care. To improve the quality of life of family caregivers, individual-focused counseling sessions should be organized for caregivers soon after birth. This will provide an opportunity to discuss the laid out plans for supportive care. It will also be as an avenue to address the arising social issues by health professionals and counselors.

Cleft Lip - psychology

Access to Information - psychology

Caregivers - psychology

Humans

Focus Groups

Infant

Male

Professional-Family Relations

Empathy

Cleft Palate - psychology

Young Adult

Adolescent

Quality of Life

Adult

Female

Surveys and Questionnaires

Nigeria

Infant, Newborn

Communication

Details

Title: Subtitle: Quality of life of family caregivers of children with orofacial clefts in Nigeria: a mixed-method study
Creators: T Awoyale - Lagos University Teaching Hospital, Lagos, Nigeria
A T Onajole - Community Health and Primary Care, University of Lagos, Lagos, Nigeria
B E Ogunnowo - Department of Community Health, University of Lagos, Lagos, Nigeria
W L Adeyemo - Department of Oral and Maxillofacial Surgery, University of Lagos, Lagos University Teaching Hospital, Lagos, Nigeria
K L Wanyonyi - King's College London Dental Institute, London, UK
A Butali - Department of Oral Pathology, Radiology and Medicine, Dows Institute for Dental Research, College of Dentistry, University of Iowa, Iowa City, IA, USA
Resource Type: Journal article
Publication Details: Oral diseases, Vol.22(2), pp.116-122
DOI: 10.1111/odi.12379
PMID: 26456150
PMCID: PMC4744119
NLM abbreviation: Oral Dis
ISSN: 1354-523X
eISSN: 1601-0825
Publisher: Denmark
Grant note: K99 DE022378 / NIDCR NIH HHS NIDCR K99/R00 DE022378 / NIDCR NIH HHS R00 DE022378 / NIDCR NIH HHS
Language: English
Date published: 03/2016
Academic Unit: Oral Pathology, Radiology and Medicine; Stead Family Department of Pediatrics; Craniofacial Anomalies Research Center; Dental Research
Record Identifier: 9984065704802771

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