Racial differences in patient consent policy preferences for electronic health information exchange

Carolyn L Turvey; Dawn M Klein; Kim M Nazi; Susan T Haidary; Omar Bouhaddou; Nelson Hsing; Margaret Donahue

doi:10.1093/jamia/ocaa012

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Racial differences in patient consent policy preferences for electronic health information exchange

Journal article

Open access

Racial differences in patient consent policy preferences for electronic health information exchange

Carolyn L Turvey, Dawn M Klein, Kim M Nazi, Susan T Haidary, Omar Bouhaddou, Nelson Hsing and Margaret Donahue

Journal of the American Medical Informatics Association : JAMIA, Vol.27(5), pp.717-725

05/01/2020

DOI: 10.1093/jamia/ocaa012

PMCID: PMC7647308

PMID: 32150259

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Abstract

This study aimed to explore the association between demographic variables, such as race and gender, and patient consent policy preferences for health information exchange as well as self-report by VHA enrollees of information continuity between Veterans Health Administration (VHA) and community non-VHA heath care providers. Data were collected between March 25, 2016 and August 22, 2016 in an online survey of 19 567 veterans. Three questions from the 2016 Commonwealth Fund International Health Policy Survey, which addressed care continuity, were included. The survey also included questions about consent policy preference regarding opt-out, opt-in, and "break the glass" consent policies. VHA enrollees had comparable proportions of unnecessary laboratory testing and conflicting information from providers when compared with the United States sample in the Commonwealth Survey. However, they endorsed medical record information being unavailable between organizations more highly. Demographic variables were associated with gaps in care continuity as well as consent policy preferences, with 56.8% of Whites preferring an opt-out policy as compared with 40.3% of Blacks, 44.9% of Hispanic Latinos, 48.3% of Asian/Pacific Islanders, and 38.3% of Native Americans (P < .001). Observed large differences by race and ethnicity in privacy preferences for electronic health information exchange should inform implementation of these programs to ensure cultural sensitivity. Veterans experienced care continuity comparable to a general United States sample, except for less effective exchange of health records between heath care organizations. VHA followed an opt-in consent policy at the time of this survey which may underlie this gap.

United States

Veterans

Adult

Aged

Confidentiality

Culturally Competent Care

Ethnic Groups

Female

Health Care Surveys

Health Information Exchange

Humans

Informed Consent

Male

Middle Aged

Race Factors

Veterans Health Services

Young Adult

Details

Title: Subtitle: Racial differences in patient consent policy preferences for electronic health information exchange
Creators: Carolyn L Turvey - University of Iowa
Dawn M Klein - Iowa City VA Health Care System
Kim M Nazi - Independent Information Technology Consultant, Coxsackie, New York, USA
Susan T Haidary - United States Department of Veterans Affairs
Omar Bouhaddou - United States Department of Veterans Affairs
Nelson Hsing - United States Department of Veterans Affairs
Margaret Donahue - United States Department of Veterans Affairs
Resource Type: Journal article
Publication Details: Journal of the American Medical Informatics Association : JAMIA, Vol.27(5), pp.717-725
DOI: 10.1093/jamia/ocaa012
PMID: 32150259
PMCID: PMC7647308
ISSN: 1067-5027
eISSN: 1527-974X
Grant note: name: Virtual Specialty Care QUERI Program, award: QUE 15-2821
Language: English
Date published: 05/01/2020
Academic Unit: Psychiatry; Epidemiology
Record Identifier: 9984281753802771

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