Journal article
Rationale, Procedures, and Response Rates for a Pilot Study to Sample Cancer Survivors for NCI's Health Information National Trends Survey: HINTS-SEER 2021
Journal of health communication, Vol.29(2), pp.119-130
02/2024
DOI: 10.1080/10810730.2023.2290550
PMCID: PMC10843606
PMID: 38131342
Abstract
The National Cancer Institute's (NCI) Health Information National Trends Survey (HINTS) is a nationally representative survey of U.S. adults in which 12-17% of respondents report a cancer history. To increase representation from adult cancer survivors, in 2021, NCI sampled survivors from three Surveillance, Epidemiology, and End Results (SEER) program cancer registries: Iowa, New Mexico, and the Greater Bay Area. Sampling frames were stratified by time since diagnosis and race/ethnicity, with nonmalignant tumors and non-melanoma skin cancers excluded. Participants completed a self-administered postal questionnaire. The overall response rate for HINTS-SEER (
= 1,234) was 12.6%; a non-response bias analysis indicated few demographic differences between respondents and the pool of sampled patients in each registry. Most of the sample was 10+ years since diagnosis (
= 722; 60.2%); 392 respondents were 5 to < 10 years since diagnosis (29.6%); and 120 were < 5 years since diagnosis (10.2%). Common cancers included male reproductive (
= 304; 24.6%), female breast (
= 284; 23.0%), melanoma (
= 119; 9.6%), and gastrointestinal (
= 106; 8.6%). Tumors were mostly localized (67.8%;
= 833), with 22.4% (
= 282) regional, 6.2% (
= 72) distant, and 3.7% (
= 47) unknown. HINTS-SEER data are available by request and may be used for secondary analyses to examine a range of social, behavioral, and healthcare outcomes among cancer survivors.
Details
- Title: Subtitle
- Rationale, Procedures, and Response Rates for a Pilot Study to Sample Cancer Survivors for NCI's Health Information National Trends Survey: HINTS-SEER 2021
- Creators
- Kelly D Blake - National Institutes of HealthRichard P Moser - National Institutes of HealthAshley B Murray - National Institutes of HealthTerisa Davis - Westat (United States)David Cantor - Westat (United States)Andrew Caporaso - Westat (United States)Michele West - University of IowaSuzanne Bentler - University of IowaMeg McKinley - University of California, San FranciscoSalma Shariff-Marco - University of California, San FranciscoChuck Wiggins - Department of Internal Medicine, University of New Mexico, University of New Mexico Comprehensive Cancer Center, New Mexico Tumor Registry, Albuquerque, New Mexico, USARobin C Vanderpool - National Institutes of Health
- Resource Type
- Journal article
- Publication Details
- Journal of health communication, Vol.29(2), pp.119-130
- DOI
- 10.1080/10810730.2023.2290550
- PMID
- 38131342
- PMCID
- PMC10843606
- NLM abbreviation
- J Health Commun
- eISSN
- 1087-0415
- Grant note
- DOI: 10.13039/100000054, name: National Cancer Institute; DOI: 10.13039/100000054, name: National Cancer Institute
- Language
- English
- Electronic publication date
- 12/22/2023
- Date published
- 02/2024
- Academic Unit
- Epidemiology; College of Public Health
- Record Identifier
- 9984532204402771
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