Recommendations to researchers for aiding in increasing American Indian representation in genetic research and personalized medicine

Dana M Carroll; Carol Hernandez; Greg Braaten; Ellen Meier; Pamala Jacobson; Abbie Begnaud; Erin McGonagle; Linda Bane Frizzell; Dorothy K Hatsukami

doi:10.2217/pme-2020-0130

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Recommendations to researchers for aiding in increasing American Indian representation in genetic research and personalized medicine

Journal article

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Recommendations to researchers for aiding in increasing American Indian representation in genetic research and personalized medicine

Dana M Carroll, Carol Hernandez, Greg Braaten, Ellen Meier, Pamala Jacobson, Abbie Begnaud, Erin McGonagle, Linda Bane Frizzell and Dorothy K Hatsukami

Personalized medicine, Vol.18(1), pp.67-74

01/01/2021

DOI: 10.2217/pme-2020-0130

PMID: 33332195

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Abstract

Increasing American Indian/Alaska Native (AI/AN) representation in genetic research is critical to ensuring that personalized medicine discoveries do not widen AI/AN health disparities by only benefiting well-represented populations. One reason for the under-representation of AIs/ANs in research is warranted research distrust due to abuse of some AI/AN communities in research. An approach to easing the tension between protecting AI/AN communities and increasing the representation of AI/AN persons in genetic research is community-based participatory research. This approach was used in a collaboration between a tribe and academic researchers in efforts to increase AI/AN participation in genetic research. From the lessons learned, the authors propose recommendations to researchers that may aid in conducting collaborative and respectful research with AI/AN tribes/communities and ultimately assist in increasing representation of AIs/ANs in personalized medicine discoveries.

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Title: Subtitle: Recommendations to researchers for aiding in increasing American Indian representation in genetic research and personalized medicine
Creators: Dana M Carroll - University of Minnesota
Carol Hernandez - North Central Cancer Treatment Group
Greg Braaten - North Central Cancer Treatment Group
Ellen Meier - University of Wisconsin–Stevens Point
Pamala Jacobson - University of Minnesota
Abbie Begnaud - University of Minnesota
Erin McGonagle - University of Minnesota
Linda Bane Frizzell - University of Minnesota
Dorothy K Hatsukami - University of Minnesota
Resource Type: Journal article
Publication Details: Personalized medicine, Vol.18(1), pp.67-74
DOI: 10.2217/pme-2020-0130
PMID: 33332195
NLM abbreviation: Per Med
ISSN: 1741-0541
eISSN: 1744-828X
Publisher: Future Medicine Ltd
Number of pages: 8
Grant note: ; K01MD014795 / ; T32 DA007097 / ;
Language: English
Date published: 01/01/2021
Academic Unit: Internal Medicine
Record Identifier: 9985179800502771

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