Journal article
Redefinition: Coping with normal results from predictive gene testing for neurodegenerative disorders
Research in nursing & health, Vol.23(4), pp.260-269
08/2000
DOI: 10.1002/1098-240X(200008)23:4<260::AID-NUR2>3.0.CO;2-C
PMID: 10940951
Abstract
The purpose of this qualitative study was to describe the psychosocial impact and coping processes of normal (negative) results from predictive testing for an inherited neurodegenerative disease. Ten adults with normal results of predictive testing for the Huntington disease (HD) or the Pallido-Ponto-Nigral Degeneration (PPND) gene mutation participated in semi-structured interviews 1 month after receiving results, and seven of these participants were interviewed 6 months later. The major theme of Redefinition was derived using Knafl and Webster's analysis method (1988). People who received normal gene results experienced loss of former beliefs about themselves and developed new self definitions, relationships with family, and roles in society. This coping process evolved from a personal focus at 1 month to a broader future perspective at 6 months after testing. Identifying components of the redefinition process may be an important consideration in planning interventions to promote coping with normal gene results in persons within at-risk families.
Details
- Title: Subtitle
- Redefinition: Coping with normal results from predictive gene testing for neurodegenerative disorders
- Creators
- Janet K. Williams - University of Iowa, NursingDebra L. Schutte - Wayne State UniversityCatherine Evers - 356 Nursing Building, The University of Iowa College of Nursing, Iowa City, IA 52242-1211Patricia A. Holkup - 356 Nursing Building, The University of Iowa College of Nursing, Iowa City, IA 52242-1211
- Resource Type
- Journal article
- Publication Details
- Research in nursing & health, Vol.23(4), pp.260-269
- Publisher
- John Wiley & Sons, Inc
- DOI
- 10.1002/1098-240X(200008)23:4<260::AID-NUR2>3.0.CO;2-C
- PMID
- 10940951
- ISSN
- 0160-6891
- eISSN
- 1098-240X
- Number of pages
- 10
- Language
- English
- Date published
- 08/2000
- Academic Unit
- Nursing
- Record Identifier
- 9983557105902771
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