Journal article
Satisfaction with ankle foot orthoses in individuals with Charcot-Marie-Tooth disease
Muscle & nerve, Vol.63(1), pp.40-45
01/2021
DOI: 10.1002/mus.27027
PMCID: PMC7784614
PMID: 32696510
Abstract
Ankle foot orthoses (AFOs) are commonly prescribed to individuals with Charcot-Marie-Tooth disease (CMT). The aim of this study was to evaluate patient reported satisfaction with orthotic devices and services in individuals with CMT to provide preliminary data for advancing AFO development and improving clinical care.
The Orthotics and Prosthetics Users Survey was distributed via e-mail through the Inherited Neuropathy Consortium (INC) Contact Registry and includes 11 device-specific questions and 10 service-related questions. Participants were also asked open-ended questions about their experiences with AFOs.
Three hundred and fourteen individuals completed the survey. Over one-third of participants provided negative responses, including dislike of AFO appearance, discomfort, abrasions or irritations, and pain. Ratings of orthotic services were generally positive.
Lower scores related to discomfort, abrasions and pain identified areas for AFO improvement. Continued research in these areas will be beneficial to informing and advancing AFO development and improving clinical care.
Details
- Title: Subtitle
- Satisfaction with ankle foot orthoses in individuals with Charcot-Marie-Tooth disease
- Creators
- Riccardo Zuccarino - Department of Neurology, The University of Iowa Carver College of Medicine, Iowa City, IowaKirsten M Anderson - Department of Physical Therapy and Rehab Science, The University of Iowa Carver College of Medicine, Iowa City, IowaMichael E Shy - Department of Neurology, The University of Iowa Carver College of Medicine, Iowa City, IowaJason M Wilken - Department of Physical Therapy and Rehab Science, The University of Iowa Carver College of Medicine, Iowa City, Iowa
- Resource Type
- Journal article
- Publication Details
- Muscle & nerve, Vol.63(1), pp.40-45
- DOI
- 10.1002/mus.27027
- PMID
- 32696510
- PMCID
- PMC7784614
- NLM abbreviation
- Muscle Nerve
- ISSN
- 0148-639X
- eISSN
- 1097-4598
- Publisher
- United States
- Grant note
- UL1 TR002537 / NCATS NIH HHS R01 NS105755 / NINDS NIH HHS R21 TR003034 / NCATS NIH HHS U54 NS065712 / NINDS NIH HHS
- Language
- English
- Date published
- 01/2021
- Academic Unit
- Neurology; Molecular Physiology and Biophysics; Stead Family Department of Pediatrics; Iowa Neuroscience Institute; Physical Therapy and Rehabilitation Science
- Record Identifier
- 9984070839002771
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