Journal article
Special Therapy and Psychosocial Needs Identified in a Multidisciplinary Cancer Predisposition Syndrome Clinic
Journal of pediatric hematology/oncology, Vol.41(2), pp.133-136
03/01/2019
DOI: 10.1097/MPH.0000000000001251
PMCID: PMC6348029
PMID: 30028825
Abstract
Identification of patients with cancer predisposition syndromes (CPSs) can provide vital information to guide care of an existing cancer, survey for future malignancy, and counsel families. The same underlying mutation responsible for a CPS may also result in other phenotypic abnormalities amenable to therapeutic intervention. The purpose of this study was to examine patients followed in our multidisciplinary CPS clinic to determine the prevalence and scope of medical and psychosocial needs. Data from a baseline evaluation of a single-center patient registry was reviewed. Eligible patients included those with a known or suspected CPS. Over 3 years, 73 patients consented and had successful follow-up. Utilization rate of special therapies, defined as speech therapy, occupational therapy, and/or physical therapy, in the CPS population was 50.7%, significantly higher than a representative sample of children with special needs. Prevalence of 504/IEP (Individualized Education Program) utilization was 20.5%. Patients with CPSs have a high prevalence of medical and psychosocial needs beyond their risk for cancer, for which early screening for necessary interventions should be offered to maximize the patient's developmental potential. Future research is needed to further define the developmental and cognitive phenotypes of these syndromes, and to evaluate the effectiveness of subsequent interventions.
Details
- Title: Subtitle
- Special Therapy and Psychosocial Needs Identified in a Multidisciplinary Cancer Predisposition Syndrome Clinic
- Creators
- Andrew P. Groves - Boston Children's HospitalKatie Gettinger - Washington University in St. Louis School of MedicineTodd E. Druley - Washington University in St. Louis School of MedicineBeth A. Kozel - Washington University in St. LouisMarwan Shinawi - Washington University in St. Louis School of MedicineCaroline Mohrmann - Washington University in St. Louis School of MedicineJennifer Henry - Washington University in St. Louis School of MedicineCelina Jacobi - Washington University in St. Louis School of MedicineKathryn Trinkaus - Washington University in St. Louis School of MedicineRobert J. Hayashi - Washington University in St. Louis School of Medicine
- Resource Type
- Journal article
- Publication Details
- Journal of pediatric hematology/oncology, Vol.41(2), pp.133-136
- Publisher
- Lippincott Williams & Wilkins
- DOI
- 10.1097/MPH.0000000000001251
- PMID
- 30028825
- PMCID
- PMC6348029
- ISSN
- 1077-4114
- eISSN
- 1536-3678
- Number of pages
- 4
- Grant note
- P30CA091842 / NATIONAL CANCER INSTITUTE; United States Department of Health & Human Services; National Institutes of Health (NIH) - USA; NIH National Cancer Institute (NCI) P30 CA091842 / NCI Cancer Center Support Grant; United States Department of Health & Human Services; National Institutes of Health (NIH) - USA; NIH National Cancer Institute (NCI)
- Language
- English
- Date published
- 03/01/2019
- Academic Unit
- Stead Family Department of Pediatrics; Hematology/Oncology
- Record Identifier
- 9984353932602771
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