Journal article
Survey and electronic health record-based medication use agreement in children with cystic fibrosis: A retrospective cross-sectional study
International journal of paediatric dentistry, Vol.31(2), pp.247-253
03/2021
DOI: 10.1111/ipd.12724
PMID: 32936971
Abstract
Medication use is important to collect accurately in medically complex patients in both clinical and research settings.
We assessed patient-level agreement for medication use between self-reported survey and electronic health record (EHR) for children with cystic fibrosis (CF).
Our retrospective cross-sectional study focused on children with CF ages 6-20 years from Seattle Children's Hospital in Washington state, USA (N = 85). A self- or parent-reported survey included questions on current use of specific medications and antibiotic use in the past 2 months. We compared survey data with data abstracted from the individual's EHR and derived Cohen's Kappa statistics to estimate the level of agreement between the two methods.
Self-reported medication use was generally higher in the survey than in the EHR. The level of agreement ranged from slight for probiotics (74.1% agreement; 95% confidence interval [CI]: 64.6%-83.6%; kappa: 0.07), pancreatic enzymes (80% agreement; 95% CI: 71.3%-88.7%; kappa: 0.12), and vitamin D (55.3% agreement; 95% CI: 44.5%-66.1%; kappa: 0.20) to moderate for chronic azithromycin (80% agreement; 95% CI: 7.13%-88.7%; kappa: 0.50), proton pump inhibitors (76.5% agreement; 95% CI: 67.3%-85.7%; kappa: 0.46), and oral antibiotics (70.6% agreement; 95% CI: 60.7%-80.5%; kappa: 0.42).
There is considerable heterogeneity in level of agreement in medication use between self-reported survey and EHR data for children with CF. Standardized approaches are needed to improve the accuracy of medication data collected in clinical practice and research.
Details
- Title: Subtitle
- Survey and electronic health record-based medication use agreement in children with cystic fibrosis: A retrospective cross-sectional study
- Creators
- Jordan T Banks - University of WashingtonMargaret Rosenfeld - Seattle Children's HospitalLloyd Mancl - University of WashingtonDonald L Chi - University of Washington
- Resource Type
- Journal article
- Publication Details
- International journal of paediatric dentistry, Vol.31(2), pp.247-253
- DOI
- 10.1111/ipd.12724
- PMID
- 32936971
- NLM abbreviation
- Int J Paediatr Dent
- ISSN
- 0960-7439
- eISSN
- 1365-263X
- Grant note
- University of Washington, Cystic Fibrosis Foundation Research Development Program Center for Advanced Study in the Behavioral Sciences (CASBS) at Stanford University Sunstar Americas Pediatric Prevention Award UL1TR002319 / National Institute of Health National Center for Advancing Translational Sciences, Clinical and Translational Science Award (CTSA) William T. Grant Foundation Scholars Program K08DE020856 / NIDCR NIH HHS
- Language
- English
- Date published
- 03/2021
- Academic Unit
- Public Policy Center (Archive)
- Record Identifier
- 9984283856202771
Metrics
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