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Symptom Burden and Self-Advocacy: Exploring the Relationship Among Female Cancer Survivors
Journal article   Open access   Peer reviewed

Symptom Burden and Self-Advocacy: Exploring the Relationship Among Female Cancer Survivors

Teresa L Hagan, Stephanie Gilbertson-White, Susan M Cohen, Jennifer S Temel, Joseph A Greer and Heidi S Donovan
Clinical journal of oncology nursing, Vol.22(1), pp.E23-E30
02/01/2018
DOI: 10.1188/18.CJON.E23-E30
PMCID: PMC5841467
PMID: 29350706
url
https://doi.org/10.1188/18.CJON.E23-E30View
Published (Version of record) Open Access

Abstract

Although patient self-advocacy is a critical component of patient-centered care, the association between symptom burden and self-
advocacy has received little attention. 
. This analysis evaluates the degree to which self-advocacy is associated with symptom burden among women with a history of cancer. 
. Participants completed online or paper questionnaires. Descriptive statistics and ordinary least squares regression models were used to analyze the association between the three dimensions of self-advocacy and two dimensions of symptom burden. Participants reported moderate levels of symptom burden. Fatigue, disturbed sleep, and memory problems were most common. Informed decision making was positively associated with symptom burden and participants' burden across the three most severe symptoms. Effective communication was negatively associated with total symptom burden and the degree to which symptoms interfered with daily life.
 Humans Middle Aged Cancer Survivors - psychology Symptom Assessment - psychology Patient Advocacy - psychology Young Adult Breast Neoplasms - psychology Aged, 80 and over Adult Female Surveys and Questionnaires Aged Interpersonal Relations Adaptation, Psychological

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