Journal article
The Lived Experience of Patients with Adult Acquired Buried Penis
The Journal of urology, Vol.208(2), pp.396-405
08/01/2022
DOI: 10.1097/JU.0000000000002667
PMID: 35767655
Abstract
Purpose: We describe the lived experience of adults with acquired buried penis (AABP) through thematic analysis of patient interviews. We examine the challenges that patients face and the impacts of surgery.
Materials and Methods: This mixed-methods study utilized validated instruments and semi-structured interviews to capture pre- and postsurgical outcomes. Semi-structured interviews were conducted with open-ended questions to elicit the impact of AABP on a patient's quality of life in several domains including urinary function, sexual function, interpersonal relationships and mental health. Recruitment was completed once we achieved thematic saturation.
Results: Twenty patients participated in the study; 11 underwent surgical treatment for AABP. Semi-structured interviewee responses were coded into 12 different themes and 39 subthemes. The most common themes were problems with urinary (19/20, 95%) and sexual function (19/20, 95%). Most participants (16/20, 80%) reported negative impacts of AABP on social life. Interviewees struggled with relationships (8/20, 40%) and mental health (11/20, 55%), often avoiding romantic relationships and reporting fear of rejection with concomitant depression and/or anxiety. The majority (70%, 14/20) experienced difficulties accessing care. Among patients who underwent surgery, the majority discussed improvement in urinary and sexual function (82% [9/11] and 73% [8/11], respectively). Though weight gain was a precipitating factor, weight loss did not result in symptom improvement. Rather, in 4/20 (20%), weight loss made their condition worse.
Conclusions: Patients living with AABP experience profound negative impacts on quality of life including their urinary and sexual function, social life and mental health. Many patients face issues with access to care.
Details
- Title: Subtitle
- The Lived Experience of Patients with Adult Acquired Buried Penis
- Creators
- Gregory M. Amend - Icahn School of Medicine at Mount SinaiJordan T. Holler - University of California, San FranciscoMichael J. Sadighian - University of California, San FranciscoNatalie Rios - University of California, San FranciscoNizar Hakam - University of California, San FranciscoBehnam Nabavizadeh - University of California, San FranciscoAnthony Enriquez - University of California, San FranciscoNathan Shaw - University of California, San FranciscoAlex J. Vanni - Lahey Hospital and Medical CenterLee Zhao - New York UniversityBradley A. Erickson - University of IowaJill C. Buckley - University of California San DiegoBenjamin N. Breyer - University of California, San Francisco
- Resource Type
- Journal article
- Publication Details
- The Journal of urology, Vol.208(2), pp.396-405
- DOI
- 10.1097/JU.0000000000002667
- PMID
- 35767655
- NLM abbreviation
- J Urol
- ISSN
- 0022-5347
- eISSN
- 1527-3792
- Publisher
- Lippincott Williams & Wilkins
- Number of pages
- 10
- Language
- English
- Date published
- 08/01/2022
- Academic Unit
- Urology
- Record Identifier
- 9984319978802771
Metrics
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