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The caregivers' story: Home caregiving for persons with dementia.
Journal article   Peer reviewed

The caregivers' story: Home caregiving for persons with dementia.

Ann Wilde Kelly, Kathleen Coen Buckwalter, Geri Hall, Amy L Weaver and Howard K Butcher
Home health care management & practice, Vol.14(2), pp.99-109
01/01/2002
DOI: 10.1177/1084822302014002004

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Abstract

This study identified the salient issues of caregiving for family members of persons with dementia using computer-assisted content analysis followed by factor analysis. Differences in responses between caregivers in two treatment groups were also noted. Caregivers (N = 226) were interviewed on three occasions over 12 months. They consistently identified the following themes of caregiving in order of significance: (a) making meaning of the experience; (b) defining the caregiver role; (c) identifying specific caregiving strategies; (d) dealing with change, unpredictability, and vulnerability; (e) evaluating past and future decisions and quality of care; and (f) finding help and support. This representation of the caregiving experience is useful to home care nurses by providing a framework to address issues most important to caregivers and upon which therapeutic interventions can be developed.
Nursing caregiving

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