Journal article
The experience of caring for a family member with Alzheimer's disease
Western journal of nursing research, Vol.23(1), pp.33-55
01/01/2001
DOI: 10.1177/019394590102300104
PMID: 11216023
Abstract
The purpose of this phenomenological study was to describe the experience of caring for a family member with Alzheimer’s disease or related disorder (ADRD) living at home among a diverse sample of 103 family caregivers. The study involved secondary analysis of in-depth transcribed interview data using van Kaam’s rigorous four phase, 12-step psychophenomenological method. A total of 2,115 descriptive expressions were categorized into 38 preliminary structural elements. Eight essential structural elements emerged from an analysis of the preliminary structural elements. The eight elements were then synthesized to form the following synthetic structural definition: Caring for a family member living at home with ADRD was experienced as “being immersed in caregiving; enduring stress and frustration; suffering through the losses; integrating ADRD into our lives and preserving integrity; gathering support; moving with continuous change; and finding meaning and joy.”
Details
- Title: Subtitle
- The experience of caring for a family member with Alzheimer's disease
- Creators
- Howard Karl Butcher - University of IowaPatricia A HolkupKathleen Coen Buckwalter - University of Iowa
- Resource Type
- Journal article
- Publication Details
- Western journal of nursing research, Vol.23(1), pp.33-55
- DOI
- 10.1177/019394590102300104
- PMID
- 11216023
- NLM abbreviation
- West J Nurs Res
- ISSN
- 0193-9459
- Grant note
- Grant support R01-NR03434/NR/NINR NIH HHS/United States
- Language
- English
- Date published
- 01/01/2001
- Academic Unit
- Nursing
- Record Identifier
- 9983557785602771
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