Journal article
Transitioning care for adolescents with spina bifida in the US: challenges for management
Child's nervous system, Vol.39(11), pp.3123-3130
11/2023
DOI: 10.1007/s00381-023-05955-8
PMID: 37099139
Abstract
Open spina bifida (OSB) is a common neural tube defect. Medical and surgical care involves addressing the baseline orthopedic, urologic, and neurological dysfunction as well as the changes or declines that may occur as the patient ages. Given the complexity of this disease, coordinated, multidisciplinary care involving specialists in neurosurgery, orthopedics, urology, rehabilitation and physical medicine, pediatrics, and psychology is necessary to establish and optimize baseline function. Traditionally in the US, pediatric multispecialty spina bifida clinics have provided the patient with a coordinated medical support system. Unfortunately, this coordinated, medical home has been difficult to establish during the transition from pediatric to adult care. Medical professionals must have a strong understanding of OSB to properly manage the disease and detect and prevent associated complications. In this manuscript, we (1) describe the changing needs and challenges of people living with OSB over a lifespan, (2) delineate current practices in the transition of care for people with OSB from childhood to adulthood, and (3) provide recommendations for best practices in navigating the transition process for clinicians who provide care for those afflicted with this most complex congenital abnormality of the nervous system compatible with long term survival.
Details
- Title: Subtitle
- Transitioning care for adolescents with spina bifida in the US: challenges for management
- Creators
- Rebecca A. Reynolds - Johns Hopkins All Children's HospitalE. Haley Vance - Johns Hopkins All Children's HospitalNathan A. Shlobin - Northwestern UniversityRobin Bowman - Northwestern UniversityGail Rosseau - George Washington University
- Resource Type
- Journal article
- Publication Details
- Child's nervous system, Vol.39(11), pp.3123-3130
- Publisher
- Springer Nature
- DOI
- 10.1007/s00381-023-05955-8
- PMID
- 37099139
- ISSN
- 0256-7040
- eISSN
- 1433-0350
- Number of pages
- 8
- Language
- English
- Electronic publication date
- 04/26/2023
- Date published
- 11/2023
- Academic Unit
- Neurosurgery
- Record Identifier
- 9984446555702771
Metrics
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