Journal article
Understanding domains that influence perceived stigma in individuals with Huntington disease
Rehabilitation psychology, Vol.65(2), pp.113-121
05/01/2020
DOI: 10.1037/rep0000311
PMCID: PMC7195240
PMID: 31961169
Abstract
Persons with Huntington's disease experience stigma because of their gene status. Whereas perceived stigma has been found to impact quality of life, it is unknown how different health domains (i.e., physical, emotional, cognitive, and social) are associated with feelings of stigma. In addition, stigma research has been limited by the use of cross-sectional analyses. The current study seeks to explore which domains are associated with stigma in a longitudinal assessment of persons with Huntington's disease. Research Method/Design: The current analysis used data from the HDQLIFE study, which included 479 participants at baseline, 315 participants at 12 months, and 277 participants at 24 months. A multilevel model (time nested within person) was used to examine the effect of physical, emotional, cognitive, and social health on perceived stigma (Neuro-QoL Stigma) while controlling for demographic factors.
Findings indicate that physical, emotional, and cognitive health were associated with perceived stigma, whereas social health and demographic factors were not. Within-subject, time-varying predictors accounted for 20.2% of the variance in stigma.
Our findings suggest that perceived stigma is influenced by physical, emotional, and cognitive health, which may be treated with physical therapy, emotional counseling, and cognitive rehabilitation. Application of these therapies may relieve the burden of perceived stigma; however, more research is needed in this area. (PsycInfo Database Record (c) 2020 APA, all rights reserved).
Details
- Title: Subtitle
- Understanding domains that influence perceived stigma in individuals with Huntington disease
- Creators
- Nicholas R Boileau - University of Michigan–Ann ArborJane S Paulsen - University of IowaRebecca E Ready - Department of Psychological and Brain Sciences, University of Massachusetts.Elizabeth A Hahn - Northwestern UniversityJin-Shei Lai - Northwestern UniversityNoelle E Carlozzi - University of Michigan–Ann Arbor
- Resource Type
- Journal article
- Publication Details
- Rehabilitation psychology, Vol.65(2), pp.113-121
- DOI
- 10.1037/rep0000311
- PMID
- 31961169
- PMCID
- PMC7195240
- ISSN
- 0090-5550
- eISSN
- 1939-1544
- Grant note
- U01 NS105509 / NINDS NIH HHS R01 NS040068 / NINDS NIH HHS R01 NS077946 / NINDS NIH HHS UL1 TR000433 / NCATS NIH HHS National Institutes of Health; National Institute of Neurological Disorders and Stroke U01 NS103475 / NINDS NIH HHS
- Language
- English
- Date published
- 05/01/2020
- Academic Unit
- Psychiatry; Psychological and Brain Sciences
- Record Identifier
- 9984383904202771
Metrics
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