Urban-Dwelling Community Members' Views on Biomedical Research Engagement

Yamnia I. Cortes; Adriana Arcia; Joan Kearney; Jose Luchsinger; Robert J. Lucero

doi:10.1177/1049732315627650

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Urban-Dwelling Community Members' Views on Biomedical Research Engagement

Journal article

Open access

Peer reviewed

Urban-Dwelling Community Members' Views on Biomedical Research Engagement

Yamnia I. Cortes, Adriana Arcia, Joan Kearney, Jose Luchsinger and Robert J. Lucero

Qualitative health research, Vol.27(1), pp.130-137

01/01/2017

DOI: 10.1177/1049732315627650

PMCID: PMC5166984

PMID: 26825482

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https://www.ncbi.nlm.nih.gov/pmc/articles/5166984View

Open Access

Abstract

In this study, we explore community members' overall understanding and experience with biomedical research engagement. We conducted a qualitative analysis to explore a concept that emerged but was not specifically addressed in a pre-existing dataset obtained using four focus group sessions with 30 urban-dwelling community members. Transcripts were read in an iterative process, and an emergent content analysis was performed. Five main themes were identified: (a) engaging in research to contribute to personal or greater good, (b) hierarchy of trust, (c) the importance of disclosure and transparency, (d) practical barriers to research engagement, and (e) fear of research procedures. Community members view research engagement as a collaborative process whereby community members and researchers are involved in all stages of the investigation. Focusing on research engagement, and not merely participation, may enhance community knowledge of the research process and advance scientific knowledge.

Biomedical Social Sciences

Information Science & Library Science

Life Sciences & Biomedicine

Public, Environmental & Occupational Health

Science & Technology

Social Sciences

Social Sciences - Other Topics

Social Sciences, Biomedical

Social Sciences, Interdisciplinary

Technology

Details

Title: Subtitle: Urban-Dwelling Community Members' Views on Biomedical Research Engagement
Creators: Yamnia I. Cortes - University of Pittsburgh
Adriana Arcia - Columbia University
Joan Kearney - Yale University
Jose Luchsinger - Columbia University
Robert J. Lucero - University of Florida
Resource Type: Journal article
Publication Details: Qualitative health research, Vol.27(1), pp.130-137
DOI: 10.1177/1049732315627650
PMID: 26825482
PMCID: PMC5166984
NLM abbreviation: Qual Health Res
ISSN: 1049-7323
eISSN: 1552-7557
Publisher: Sage
Number of pages: 8
Grant note: P60MD000206; P60MD000206-08S1; 3P60MD000206-09S2 / Columbia Center for Health of Urban Minorities T32 HL083825 / National Heart, Lung, and Blood Institute, National Institutes of Health; United States Department of Health & Human Services; National Institutes of Health (NIH) - USA; NIH National Heart Lung & Blood Institute (NHLBI) T32 NR013454 / National Institute of Nursing Research, National Institutes of Health; United States Department of Health & Human Services; National Institutes of Health (NIH) - USA; NIH National Institute of Nursing Research (NINR)
Language: English
Date published: 01/01/2017
Academic Unit: Nursing
Record Identifier: 9984446428002771

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