VHA Multiple Sclerosis Surveillance Registry and its similarities to other contemporary multiple sclerosis cohorts

William J Culpepper; Mitchell T Wallin; Laurence S Magder; Eli Perencevich; Walter Royal; Douglas D Bradham; Gary Cutter; Christopher T Bever

doi:10.1682/JRRD.2014.07.0172

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VHA Multiple Sclerosis Surveillance Registry and its similarities to other contemporary multiple sclerosis cohorts

Journal article

Open access

Peer reviewed

VHA Multiple Sclerosis Surveillance Registry and its similarities to other contemporary multiple sclerosis cohorts

William J Culpepper, Mitchell T Wallin, Laurence S Magder, Eli Perencevich, Walter Royal, Douglas D Bradham, Gary Cutter and Christopher T Bever

Journal of rehabilitation research and development, Vol.52(3), pp.263-272

2015

DOI: 10.1682/JRRD.2014.07.0172

PMID: 26220064

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https://doi.org/10.1682/JRRD.2014.07.0172View

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Abstract

The Veterans Health Administration (VHA) has provided important contributions to our understanding of multiple sclerosis (MS); however, the characteristics of the modern VHA MS population have not been adequately characterized. Our objectives were to compare and contrast characteristics of the VHA MS population with other contemporary MS cohorts. A cross-sectional, mail-based survey of a stratified, random sample of 3,905 VHA users with MS was conducted. Detailed demographic and clinical data were collected as well as patient-reported outcomes assessing disability and quality of life. A total of 1,379 Veterans were enrolled into the MS Surveillance Registry (MSSR). Respondents did not differ from nonrespondents with regard to demographics or region. When compared to several other contemporary MS cohorts, some demographic differences were noted; however, the age of MS onset and diagnosis, subtype distribution, and most prevalent symptoms were very similar across MS cohorts. The MSSR appears to be representative of the general MS population. Combining the extensive VHA health services encounter data with the MSSR provides a rich and unique cohort for study.

United States - epidemiology

Prevalence

Cross-Sectional Studies

Humans

Middle Aged

Male

Multiple Sclerosis - epidemiology

Veterans Health

Quality of Life

Female

Registries

United States Department of Veterans Affairs

Veterans - statistics & numerical data

Details

Title: Subtitle: VHA Multiple Sclerosis Surveillance Registry and its similarities to other contemporary multiple sclerosis cohorts
Creators: William J Culpepper - Multiple Sclerosis Center of Excellence-East, Department of Veterans Affairs (VA), Maryland Health Care System, Baltimore, MD
Mitchell T Wallin
Laurence S Magder
Eli Perencevich
Walter Royal
Douglas D Bradham
Gary Cutter
Christopher T Bever
Resource Type: Journal article
Publication Details: Journal of rehabilitation research and development, Vol.52(3), pp.263-272
Publisher: United States
DOI: 10.1682/JRRD.2014.07.0172
PMID: 26220064
ISSN: 1938-1352
eISSN: 1938-1352
Language: English
Date published: 2015
Academic Unit: Epidemiology; Internal Medicine
Record Identifier: 9983779492302771

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