Journal article
“We're all we got is each other”: Mixed-methods analysis of patient-caregiver dyads’ management of heart failure
Heart & lung, Vol.55, pp.24-28
09/01/2022
DOI: 10.1016/j.hrtlng.2022.04.009
PMCID: PMC9247024
PMID: 35436655
Abstract
•Informal caregivers have a substantial role in direct care for individuals living with heart failure, but their contributions are under-reported.•Understanding the nature of patient-caregiver dyads can elicit a more holistic understanding of dyads’ ability to manage heart failure in the community.•Resilience can be a useful construct for evaluating heart failure management at the dyadic level.
Individuals living with heart failure often require informal caregiving assistance for optimal self-care maintenance. The influence of caregiver burden and resilience on dyadic congruence is not well understood.
To compare how dyadic congruence is influenced by level of burden and resilience expressed by caregivers of patients with heart failure.
Mixed-methods analysis of individuals with heart failure and their caregivers, focusing on measures of caregiver burden (Zarit Burden Interview) and resilience (Brief Resilience Scale). Data were integrated using the Heart Failure Care Dyadic Typology.
Twelve dyads (n=24 participants) were classified as Type II (n=7) and Type III (n=5) dyads. Among Type II dyads, average caregiver burden was 19.43 (± 13.89) and resilience was 3.16 (± 1.04). For Type III dyads, average caregiver burden was 3.80 (± 4.27) and resilience 4.07 (± 1.36), respectively. Two key themes were derived: 1) caregivers’ tendency to take the lead, and 2) the usefulness of cognitive reframing. Data integration elucidated that theme 1 was more common among Type II dyads and those with higher burden, and theme 2 was more prevalent among Type III dyads and those with higher resilience.
Findings highlight important variances in how dyads collectively manage heart failure. Future inquiry should involve tailored intervention development to bolster informal caregivers’ quality of life and ability to better support patients throughout their heart failure trajectory.
Details
- Title: Subtitle
- “We're all we got is each other”: Mixed-methods analysis of patient-caregiver dyads’ management of heart failure
- Creators
- Katie E. Nelson - Johns Hopkins UniversityMartha Abshire Saylor - Johns Hopkins UniversityAnnabel Anderson - Johns Hopkins UniversityHarleah Buck - University of IowaPatricia M. Davidson - University of WollongongLyndsay DeGroot - Johns Hopkins UniversityMarlena Fisher - Johns Hopkins UniversityNisha A. Gilotra - Johns Hopkins MedicineNoelle Pavlovic - Johns Hopkins UniversitySarah L. Szanton - Johns Hopkins University
- Resource Type
- Journal article
- Publication Details
- Heart & lung, Vol.55, pp.24-28
- Publisher
- Elsevier Inc
- DOI
- 10.1016/j.hrtlng.2022.04.009
- PMID
- 35436655
- PMCID
- PMC9247024
- ISSN
- 0147-9563
- eISSN
- 1527-3288
- Language
- English
- Date published
- 09/01/2022
- Academic Unit
- Nursing
- Record Identifier
- 9984370655602771
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