Journal article
The care of patients with Duchenne, Becker, and other muscular dystrophies in the COVID-19 pandemic
Muscle & nerve, Vol.62(1), pp.41-45
07/2020
DOI: 10.1002/mus.26902
PMID: 32329920
Abstract
The coronavirus disease 2019 (COVID-19) pandemic has resulted in the reorganization of health-care settings affecting clinical care delivery to patients with Duchenne and Becker muscular dystrophy (DBMD) as well as other inherited muscular dystrophies. The magnitude of the impact of this public health emergency on the care of patients with DBMD is unclear as they are suspected of having an increased risk for severe manifestations of COVID-19. In this article, the authors discuss their consensus recommendations pertaining to care of these patients during the pandemic. We address issues surrounding corticosteroid and exon-skipping treatments, cardiac medications, hydroxychloroquine use, emergency/respiratory care, rehabilitation management, and the conduct of clinical trials. We highlight the importance of collaborative treatment decisions between the patient, family, and health-care provider, considering any geographic or institution-specific policies and precautions for COVID-19. We advocate for continuing multidisciplinary care for these patients using telehealth.
Details
- Title: Subtitle
- The care of patients with Duchenne, Becker, and other muscular dystrophies in the COVID-19 pandemic
- Creators
- Aravindhan Veerapandiyan - Division of Neurology, Department of Pediatrics, University of Arkansas for Medical Sciences, Arkansas Children's Hospital, Little Rock, ArkansasKathryn R Wagner - Center for Genetic Muscle Disorders, Kennedy Krieger Institute and Departments of Neurology and Neuroscience, Johns Hopkins School of Medicine, Baltimore, MarylandSusan Apkon - Department of Physical Medicine and Rehabilitation, University of Colorado School of Medicine, Aurora, ColoradoCraig M McDonald - Department of Physical Medicine and Rehabilitation and Department of Pediatrics, University of California Davis Health System, Sacramento, CaliforniaKatherine D Mathews - Department of Pediatrics, University of Iowa Carver College of Medicine, Iowa City, IowaJulie A Parsons - Department of Neurology and Pediatrics, University of Colorado School of Medicine, Aurora, ColoradoBrenda L Wong - Department of Pediatrics and Neurology, University of Massachusetts Medical School, Worcester, MassachusettsKaty Eichinger - Department of Neurology, University of Rochester Medical Center, Rochester, New YorkPerry B Shieh - Department of Neurology, University of California Los Angeles, Los Angeles, CaliforniaRussell J Butterfield - Department of Pediatrics and Neurology, University of Utah School of Medicine, Salt Lake City, UtahVamshi K Rao - Division of Neurology, Department of Pediatrics, Ann and Robert H. Lurie Children's Hospital of Chicago, Northwestern University Feinberg School of Medicine, Chicago, IllinoisEdward C Smith - Division of Neurology, Department of Pediatrics, Duke University Medical Center, Durham, North CarolinaCrystal M Proud - Division of Neurology, Department of Pediatrics, Children's Hospital of The King's Daughters, Norfolk, VirginiaAnne M Connolly - Division of Neurology, Department of Pediatrics, Nationwide Children's Hospital, The Ohio State University College of Medicine, Columbus, OhioEmma Ciafaloni - Department of Neurology, University of Rochester Medical Center, Rochester, New York
- Resource Type
- Journal article
- Publication Details
- Muscle & nerve, Vol.62(1), pp.41-45
- Publisher
- United States
- DOI
- 10.1002/mus.26902
- PMID
- 32329920
- ISSN
- 0148-639X
- eISSN
- 1097-4598
- Language
- English
- Date published
- 07/2020
- Academic Unit
- Neurology; Stead Family Department of Pediatrics; Iowa Neuroscience Institute; Neurology (Pediatrics)
- Record Identifier
- 9984070669302771
Metrics
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