Use of complementary and alternative medicine by males with Duchenne or Becker muscular dystrophy

Sarah K Nabukera; Paul A Romitti; Kimberly A Campbell; F John Meaney; Kristin M Caspers; Katherine D Mathews; Stacey M Hockett Sherlock; Soman Puzhankara; Christopher Cunniff; Charlotte M Druschel; Shree Pandya; Dennis J Matthews; Emma Ciafaloni; MD STARnet

doi:10.1177/0883073811426501

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Use of complementary and alternative medicine by males with Duchenne or Becker muscular dystrophy

Journal article

Peer reviewed

Use of complementary and alternative medicine by males with Duchenne or Becker muscular dystrophy

Sarah K Nabukera, Paul A Romitti, Kimberly A Campbell, F John Meaney, Kristin M Caspers, Katherine D Mathews, Stacey M Hockett Sherlock, Soman Puzhankara, Christopher Cunniff, Charlotte M Druschel, …

Journal of child neurology, Vol.27(6), pp.734-740

06/2012

DOI: 10.1177/0883073811426501

PMCID: PMC5882202

PMID: 22156783

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http://doi.org/10.1177/0883073811426501View

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Abstract

Use of complementary and alternative medicine by males with Duchenne or Becker muscular dystrophy was examined using interview reports from caregivers enrolled in the population-based Muscular Dystrophy Surveillance, Tracking, and Research Network. Of the 200 caregivers interviewed, 160 (80%) reported "ever" using complementary and alternative medicine for their affected children. Mind-body medicine (61.5%) was most frequently used, followed by biologically based practices (48.0%), manipulative and body-based practices (29.0%), and whole medical systems (8.5%). Caregivers reporting use of whole medical systems had higher education and income levels compared with nonusers; affected males had shorter disease duration. Caregivers reporting use of mind-body medicine, excluding aquatherapy, had higher education level compared with nonusers. Overall, complementary and alternative medicine use was high; disease duration, education, and income levels influenced use. These findings have implications for developing clinical care protocols and monitoring possible interactions between complementary and alternative medicine and conventional medical therapies.

Caregivers

Humans

Middle Aged

Complementary Therapies - trends

Male

Muscular Dystrophy, Duchenne - epidemiology

Complementary Therapies - methods

Adult

Complementary Therapies - statistics & numerical data

Retrospective Studies

Interview, Psychological

Muscular Dystrophy, Duchenne - therapy

Population Surveillance

Details

Title: Subtitle: Use of complementary and alternative medicine by males with Duchenne or Becker muscular dystrophy
Creators: Sarah K Nabukera - Department of Epidemiology, The University of Iowa, Iowa City, IA 52242-5000, USA
Paul A Romitti
Kimberly A Campbell
F John Meaney
Kristin M Caspers
Katherine D Mathews
Stacey M Hockett Sherlock
Soman Puzhankara
Christopher Cunniff
Charlotte M Druschel
Shree Pandya
Dennis J Matthews
Emma Ciafaloni
MD STARnet
Resource Type: Journal article
Publication Details: Journal of child neurology, Vol.27(6), pp.734-740
DOI: 10.1177/0883073811426501
PMID: 22156783
PMCID: PMC5882202
NLM abbreviation: J Child Neurol
ISSN: 0883-0738
eISSN: 1708-8283
Publisher: United States
Grant note: U01 DD000189 / NCBDD CDC HHS U01DD000189 / NCBDD CDC HHS
Language: English
Date published: 06/2012
Academic Unit: Neurology; Stead Family Department of Pediatrics; Epidemiology; Iowa Neuroscience Institute; Biostatistics; Neurology (Pediatrics)
Record Identifier: 9983996187202771

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